Fibroids

Uterine Fibroids. You’ve heard the term; if you’re American, you’ve probably seen a drug commercial for a medication to take to relieve your symptoms (yes, the USA has these crazy drug commercials pushing out prescription pharmaceuticals with catchy tunes and all).

But what exactly are uterine fibroids and why am I writing this article on them? Basically, I want you to be your own biggest advocate when it comes to your health and these tumors (normally non-cancerous) are extremely common in women of child-bearing age and older and can be a real pain!

According to UCLA OBGYN (http://obgyn.ucla.edu/fibroids) uterine fibroids also known as leiomyomas (pronounced ‘lie-o-my-O-muhs’) or uterine fibromas, are “firm, compact tumors that are made of smooth muscle cells and fibrous connective tissue that develop in the uterus.” They are the most common tumors in the female reproductive system, effecting between 20-50 percent of women of reproductive age. Twenty to fifty percent! That’s huge! The thing is they can range in size from something so small as to be undetectable, to something as large as a grapefruit! They can grow inside or outside of the uterus and they can grow back! The only medical guarantee you’ll get for them not growing back is if you have a hysterectomy! But aren’t so many women too young to have hysterectomies? Obviously it’s not an option if you’re not done with having kids either!

Sometimes I feel like we are living in the dark ages. How can this be the only way to permanently get rid of fibroids? Please don’t despair though, there are other options for treatment, just know though, there is always the possibility they will come back.

First things first, what causes uterine fibroids? Guess what? No one really has a clue! There are some indicators that hormones (estrogen and progesterone) play a role, “Fibroids contain more estrogen and progesterone receptors than normal uterine muscle cells do” and fibroids tend to shrink after menopause. Other than that, it’s a bit of a guessing game!

As far as who’s likely to get them goes, unfortunately African American women seem more prone to uterine fibroids, they are also likely to be affected at a younger age. If there’s a history of them in your family, then that too is an indicator of increased risk. There could also be environmental factors that play a part, but in my opinion, there needs to be a whole lot more research done on these.

What are the signs and/or symptoms of uterine fibroids? Well, a friend of mine who had a very large uterine fibroid started with very heavy periods. These can actually be so heavy in fact, that you end up losing too much blood and in her case, needing to get a red blood cell transfusion for severe iron-deficiency anemia. Now this is extreme yes, but not as extreme as we would like it to be and if you’re anything like me, you don’t necessarily pay attention when your body goes through some minor changes like heavier periods. What other things can you be on the lookout for? Well normally fibroids aren’t painful, but if you’re experiencing any pain or pressure in that region that seems somewhat inexplicable, definitely go and get yourself checked out, you could experience pain in your back or even in your legs (could be symptoms of many other things too, I know!) What else? Periods lasting longer than a week. Peeing lots and feeling like you still need to pee after you’ve peed – that’s a lot of peeing right there! 😆  Not a laughing matter but worth a chuckle. And if that’s not enough then there’s the constipation you could also experience! Yippee! Nothing better than peeing a lot but not being able to go number two! (Definite sarcasm happening here 😉). Of course, there could be other things going on or you could be having no symptoms at all, then your doctor surprises you with the news that you’ve got uterine fibroids after your most recent lady exam! Not fun news for anyone! Basically, it’s time to start thinking about how to get rid of those suckers!

So what to do next? Well after the news has been confirmed through those wonderful pelvic exams or if that doesn’t work out, your doctor may use one of the following methods: ultrasound, or lab tests to rule out other causes of anemia, MRI, or a one of these lesser known tests –

HysterosonographyAlso called saline-infusion sonography, is basically where they inject sterile saline in the uterus cavity and use ultrasound to get a better picture of what’s happening.

For more info, click here

Hysterosalpingography: This is more commonly used if infertility is an issue. It’s where your doctor injects your uterus and Fallopian tubes with a dye then uses X-ray to see what’s happening.

For more info click here

Hysteroscopy: This one’s a little more invasive. Your doctor will insert a small, thin, lighted tube into your vagina and go all the way into your cervix. You will be injected with a liquid or gas to expand the area so your doc can have a good look around. This might be done under a local or even a general anesthetic. Doesn’t sound like much fun at all, but if it has to be done, at least know exactly how it all works and what you might experience afterwards!

For more info, click here

I am by no means a medical expert, so I’m trying to write this article in layman’s/laywoman’s terms so you know what to look for and some basic options. Obviously your doc will share with you some, if not all, the options of treatment and what’s best in your situation, but I’m going to give you a list of treatment options right here and try to break each option down a little for you, so you know what questions to ask if these come up.

Watchful waiting is actually a very common option. You literally do what it sounds like and patiently wait, hoping the fibroids will go away on their own. Every woman is different and every fibroid can be different. Sometimes this works, sometimes it doesn’t. When it doesn’t, there are numerous other options:

Firstly, let’s start with medications:

Androgens: Just as it sounds, it’s like a male hormone and can give the side effects that you imagine such as weight gain, unwanted hair growth and a deeper voice, as well as a few others, so make sure you are fully versed in everything you can be about this drug.

Birth control: I’m pretty sure you’re familiar 😊

Gonadotropin-releasing hormone (Gn-RH) agonists:Basically this puts your body into a menopause-like state for the time that you take them. You can only have it for a matter of months also because it can cause bone loss. The other thing is that the fibroids may grow back the minute you stop Gn-RH.

Progestin-releasing intrauterine device (IUD): This is really used to relieve the heavy bleeding from uterine fibroids, it doesn’t shrink them, obviously it also acts as a birth control, so not an option if you’re hoping to become pregnant.

Tranexamic acid (Lysteda): This is another one taken to ease heavy bleeding. It’s non-hormonal though and only taken on heavy bleeding days.

Other options (There could be more options, especially as modern medicine embarks on new discoveries – hopefully anyway, but these are the most common as of the time of writing):

There are some non-invasive options such as MRI-guided Focused =Ultrasound Surgery. This is performed whilst you’re inside an MRI – your doc gets a precise location of the fibroids, then uses an ultrasound transducer to target sound waves to heat, thereby destroying bits of the fibroids. So far this one has got thre thumbs up as being safe and effective but again, not at stopping the fibroids from growing again.

Then we have the minimally invasive procedures such as Uterine Artery Embolization, where small particles are injected into the arteries supplying the uterus. They cut off the blood flow to the fibroids and basically shrink them, relieveing all other symptoms at the same time. the only problem with this is if your doctor gets it wrong or something happens and the blood supply to the ovaries gets screwed up somehow. This can cause major complications.

Myolysis is a laparoscopic procedure where an electric current (laser) basically destroys the fibroids and shrinks the blood supply that feeds it. Cryomyolysis works the same but freezes it instead.

Laparoscopic or Robotic Myomectomy is when your doctor makes small incisions on the abdomen and uses a camera on the end of one ot the instruments to see and therefore remove the fibroids through these incisions. The Robotic side of it is where there’s a magnified 3-D view that offers more precision and I’m sure a hell of a lot more cost.

Hysteroscopic Myomectomy seems like a rather uncomfortable procedure where the camera and instruments are inserted through the vagina rather than through the abdomen. This procedure is really for fibroids that are inside the uterus (submucosal).

Endometrial ablation is really for any abnormal bleeding rather than anything else, though can be combined with the Hysteroscopic Myomectomy to remove submucosal fibroids.

Then there are the traditional surgical procedures, of which the most well-known is the Hysterectomy, basically the removal of the uterus. This unfortunately is the only proven permanent solution for fibroids and is obviously not an option if you would like to have children. If you also have your ovaries removed at the time of your hysterectomy then the surgery will bring on menopause, and a whole new set of things to consider!

The other surgical option is an Abdominal Myomectomy for when you have very large or very deep fibroids or if you have a number of them. It is true surgery where they open you up through the abdomen and remove the fibroids, but the scarring afterwards can actually affect future fertility though is a better option (IMHO) if you are still wanting to have a baby, than a hysterectomy.

Again, be your own advocate and find out exactly what your doctor is recommending and read, read, read. Make informed decisions about your own body, remember that you have the right to decide what is best for you.

Also, please don’t ignore those warning signs!

If you enjoy reading my crazy, varied blogs, please subscribe here on WordPress. Sharing is caring, so feel free to share with your friends. I’m on Facebook: Aussie Mum’s Adventures. Come like my page and share it with your friends! You can find me on Twitter: @ozmumsadventures, on Instagram: Ozmumsadventures, on Pinterest: Aussiemumsadventures And please subscribe to my YouTube channel: Aussie Mum’s Adventures (I’m still working on it, so please have patience with me!).

 

Miscarriage – Mourning the could-have-beens – part 2

If you haven’t read part 1 of my story, please use this link: Miscarriage – Mourning the could-have-beens – part 1 and head over to it.

The second time I miscarried was about 7 months after my first miscarriage. I was 11 weeks, 6 days pregnant.

Facebook was a fairly new thing and I had just begun to connect with a whole heap of people online. As with the first miscarriage, I had been to the doctor and had the pregnancy confirmed. It was standard practice in Texas to come back at 12 weeks to hear the fetal heartbeat and do various first trimester blood tests, etcetera. We were excited. After the first miscarriage, I bought a fetal Doppler so I could find the heartbeat myself & after a lot of searching and much panicking, we did find it. It was all very exciting. I would go and try to find the heartbeat almost daily though, which was probably unhealthy in itself. Anyway, we were excited. We were expecting & at 11 weeks, 5 days, I announced it to the world via Facebook, what could it hurt right? My appointment was in 2 days, things seemed to be coming along nicely.

The following morning, Texas started going in to panic mode as there was a big ice storm coming. The entire city of San Antonio began to shut down. We got a call from the doctor’s office saying we would have to reschedule our appointment (it was meant to be for the next day) as the city had closed everything. They would call us back after the ice storm to find another time for the appointment. The timing was incredible.

That afternoon, I began spotting all over again. I couldn’t believe it but read that it can happen, even during a normal pregnancy. I was trying to be calm but when we couldn’t find a heartbeat, something kicked in and I knew in my heart of hearts that this was happening all over again!

It was very different this time. It’s really tough for me to explain and to tell this story, but I pretty much started to go into labor (I had a child, so I knew what that felt like). Everything was wrong. Hubby was at work again – he worked for a home improvement store so had to make sure people got the supplies they needed for the ice storm, ironically.

Our little girl was amazing! She just sat out in the living room watching tv, being the sweet, responsible, almost 3 year old, that I was so incredibly lucky to have!

But what I went through was awful! It didn’t last for that long. But imagine actually giving birth to something that doesn’t resemble a baby at all. I know you can find photos on the internet that look like a tiny baby when you are almost 12 weeks pregnanct, but this was a lump. I couldn’t mourn it, I couldn’t stand looking at it. It didn’t have limbs, it was just a lump. And in some ways it made it easier to move forward and in other ways, far more difficult. That fact that I had been through the whole process of a miniature labor, was very tough to swallow, the fact that it didn’t remotely resemble what the books showed you, made it a tad easier, I guess.

For 3 days San Antonio was shut down, even hubby stayed home for 2 of them. By the time the clinic called back to reschedule, I knew it was all over and told them as much. They wanted me to go to have a D&C (a clean out to make sure everything is out of you so you don’t have any chance of getting an infection) but I knew everything was out of me. I knew my body had done its job. I just knew.

I spent my next few weeks in a daze and thought our daughter would end up being an only child. Obviously I was too old or I had done too much damage in my earlier days through smoking and drinking. It was a tough pill to swallow as one thing I adamantly didn’t want was an only child! But I put thoughts of another baby on the back burner and focused on the child I did have. I gave up smoking (yes, I still smoked – outside – after having our first child – obviously I stopped during the pregnancy-but I stopped completely this time). I started to exercise and even started making some friends. Hubby introduced me to some of the spouses of his college cohort and we all started to socialize on a regular basis too. It was a really fun time in our lives and we made the most of the family time we got together and the quality of life our daughter had.

About 1 year later, I was fortunate enough to get pregnant again and everything seemed to be different from the get go. It was meant to be. And my second little girl is 10 going on 18. She’s a handful, but an absolute joy.

I even got a surprise third baby about 4 years after she was born, when my husband was waiting for a vasectomy of all things! Had I not though, there wouldn’t be any Hunter-isms! 😁 Check out my Facebook page to find out more info about those!

I hope you’ve found this blog helpful and in your time of need, you know that you are not alone. Please feel free to share so others understand how many of us have been through this. Come on over to Aussie Mum’s Adventures on FB and like my page: Aussie Mum’s Adventures. You can find me on Twitter: @ozmumsadventures, on Instagram: Ozmumsadventures, on Pinterest: Aussiemumsadventures.

If you or someone you love has experienced a miscarriage, please remember there are resources out there to help you.

In the USA:

https://www.gopinkandblue.org

In Australia:

https://www.pregnancylossaustralia.org.au

In NZ:

https://www.miscarriagesupport.org.nz

In UK:

https://www.miscarriageassociation.org.uk

Miscarriage – Mourning the could-have-beens – Part 1

 

Screen Shot 2019-02-20 at 10.53.02 PMMiscarriage, it’s the kind of word that comes with lots of stigma. It’s the kind of word that seems to hush the room when spoken, no-one knowing what to say, yet statistically, it happens often.

According to March of Dimes:

“Miscarriage (also called early pregnancy loss) is when a baby dies in the womb (uterus) before 20 weeks of pregnancy. For women who know they’re pregnant, about 10 to 15 in 100 pregnancies (10 to 15 percent) end in miscarriage. Most miscarriages happen in the first trimester before the 12th week of pregnancy. Miscarriage in the second trimester (between 13 and 19 weeks) happens in 1 to 5 in 100 (1 to 5 percent) pregnancies.

As many as half of all pregnancies may end in miscarriage. We don’t know the exact number because a miscarriage may happen before a woman knows she’s pregnant. Most women who miscarry go on to have a healthy pregnancy later.”

This might be a tad tough to read, it’s certainly tough to write, but sometimes we need to share our stories to help others through their struggles. it’s that spoken about, yet unspoken thing that so many women have to endure. The United States is currently in the midst of an abortion debate, but we seem to forget about those who tragically lose a fetus, particularly when they are trying to conceive.

Unfortunately I know this from experience, twice. The first time, I was 8 weeks pregnant, we were super excited. Life was good. We had moved to Texas from Italy, my husband had left the Navy and started school to earn his bachelor’s degree. He was working a part time job, our eldest daughter was two and we were ready to increase our family. Money was tight and we didn’t have great insurance coverage but it was good enough to cover a pregnancy and we knew that once my husband had finished his degree, we would be ok. Life had other plans at that point in time though. 

I was approximately 8 weeks pregnant. We had confirmed the pregnancy at a doctor’s appointment when I was approximately 6 weeks pregnant. They told us to make another appointment at 12 weeks, we were delighted. One of my hubby’s friends was having a party and I was designated driver (obviously). We were having a good time when suddenly something didn’t feel right. I went to the bathroom and had some fairly prominent spotting. We left the party shortly thereafter. I was concerned, but tried to remain as calm as possible.

The following morning, I dropped my husband off at work and was driving home when all of a sudden the bleeding became fairly heavy. It was scary. My two year old daughter was in the car. I was alone. We got home and she saw the blood and started crying asking if Mummy was ok. I was more scared for the scarring this could do to her than anything else at this point in time, so I tried to reassure her I was ok. Even thinking about it now makes my heart beat faster. With only one car, it wasn’t even like I could physically go and pick up my husband from work, so I sat there with my little girl and cried and miscarried throughout that day. Alone, in a foreign country, not knowing anyone close by. 

When I did go and pick up my husband, who was blissfully unaware of all that had transpired throughout the day, he saw me and seemed to understand something was terribly wrong immediately. We decided to go to the emergency room to make sure it was a miscarriage and that nothing further was wrong. Unfortunately, it was all but confirmed (another blog to come about this whole ghastly experience) so I went home with a heavy heart. 

I’m pretty sure I cried for the next week or so. I felt lost. I felt like I had failed. I felt alone. I wanted to give my Mum a hug and have her tell me everything was ok, but unfortunately she was on the other side of the world. Thank god I could at least talk to her on the phone! My husband tried to be there for me, but he didn’t really know what to say or do. I couldn’t help him either, I was a little lost and trying to hold my shit together for our daughter. He was doing his best to hold down the fort in every possible way. 

What do you say when someone has a miscarriage? Well here’s what not to say, “it was obviously for the best as something must have been wrong with it.” Um, no. Just no. (and yes, people felt the need to say this to me). That might be true, but when someone dies after suffering incredible pain, you don’t tell their family that it was for the best, it just doesn’t work! Just listen. Say you’re sorry. If you’ve been through it yourself, share that information. Tell the person you have some understanding of what they’re going through. Remember that everyone feels pain differently, your experiences are probably different to theirs and if you’ve never been through it, then you honestly don’t understand. Be honest. Let them talk or sit in silence. Its similar to grieving for a loved one. You didn’t know that child, but you lost the promise of all that could have been. When you find out you are pregnant, you are excited, you can’t help but wonder what this child will be like; is it a girl? A boy? Twins? Will they be a prodigy? Will they be funny? Sweet? What sort of mother will you be? How many adventures will you have? So many things run through your head the minute a pregnancy is confirmed. And it’s all the could-haves that break your heart when you miscarry.

I mentioned earlier that I had a second miscarriage and I will share the details of that in part two of this blog. Miscarriage can be terribly lonely. Women feel ostracized by it. But you are not alone and it’s ok. You will get through. You will be ok. We will be ok. More than likely, you did everything right. No-one can really explain why miscarriages happen, but what we do know is that everyone experiences different emotions when they go through a miscarriage; you doubt your own body, you question what you’ve done to deserve this. Some people grieve immediately, others later. At the end of the day, it’s painful, but you are very much allowed to mourn your loss; to mourn the could-have’s. 

I hope you’ve found this blog helpful and in your time of need, you know that you are not alone. Please feel free to share so others understand how many of us have been through this. Come on over to Aussie Mum’s Adventures on FB and like my page: Aussie Mum’s Adventures. You can find me on Twitter: @ozmumsadventures, on Instagram: Ozmumsadventures, on Pinterest: Aussiemumsadventures.

If you or someone you love has experienced a miscarriage, please remember there are resources out there to help you.

In the USA:

https://www.gopinkandblue.org

In Australia:

https://www.pregnancylossaustralia.org.au

In NZ:

https://www.miscarriagesupport.org.nz

In UK:

https://www.miscarriageassociation.org.uk

Resources:

March of Dimes